This year Prohealth has a big presence at CSCW 2021. Posdoctoral student Dr. Clara Caldeira, Ph.D. students Novia Nurain, Aehong Min, and Professors Dr. Christina Chung, Dr. Patrick Shih and Dr. Kay Connelly will be presenting their research. In addition, Ph.D. students Arash Zakerefahani, Pallabi Bhowmick, Novia Nurain, Zaidat Ibrahim, and Ariel Wang will be helping out to make sure everything runs smoothly as student volunteers! This year, the conference will be held virtually from October 23 – 27. The schedule of presentations is as follows:
Tuesday, October 26th 2021
Towards Supporting Data-Driven Practices in Stroke Telerehabilitation Technology
Authors: Clara Caldeira, Mayara Costa Figueiredo, Lucy Dodakian, Cleidson de Souza, Steven C. Cramer, Yunan Chen
Presentation time: 10:00 – 11:30 (ET)
Abstract: Telerehabilitation technology has the potential to support the work of patients and clinicians by collecting and displaying patients’ data to inform, motivate, and support decision-making. However, few studies have investigated data-driven practices in telerehabilitation. In this qualitative study, we conducted interviews and a focus group with the use of data visualization probes to investigate the experience of stroke survivors and healthcare providers with game-based telerehabilitation involving physical and occupational therapy. We find that participants saw potential value in the data to support their work, however they experienced challenges when interpreting data to arrive at meaningful insights and actionable information. Further, patients’ personal relationships with their goals and data stand in contrast with clinicians’ more matter-of-fact perspectives. Informed by these results, we discuss implications for telerehabilitation technology design.
Hugging with a Shower Curtain: Older Adults’ Social Support Realities During the COVID-19 Pandemic
Presentation time: 11:30 – 13:00 (ET)
Awards: Impact Recognition
Abstract: The COVID-19 pandemic led to dire consequences globally, and it has been particularly challenging for older adults. They are at a higher risk of adverse outcomes of the disease. Older adults also use less technology than other age groups, so they mostly rely on in-person interactions and services for social support. However, disease mitigation efforts such as social distancing and self-quarantining severely limited in-person interactions, hindering older adults’ social support during the COVID-19 crisis. In this paper, we present findings on social support realities from semi-structured interviews with older adults (N=15) living alone in community dwellings. We found that older adults’ support roles, support sources, and support concerns evolve as they passed through this time of sweeping change. They are enthusiastic about providing support to people who are older and more vulnerable than themselves. At the same time, their needs for safety, autonomy, and independence create tensions around social support. We propose a framework to illustrate the evolving ecology of social support that can facilitate the holistic design of socio-technical support systems for older adults. We argue against the societal portrayal of older adults as vulnerable individuals. Rather, there is an opportunity to design support systems considering them as anchors in society. Towards that goal, we present design implications for future socio-technical support systems to empower older adults to age in place during a crisis.
Just In Time: Challenges and Opportunities of First Aid Care Information Sharing for Supporting Epileptic Seizure Response
Presentation time: 14:30 – 16:00 (ET)
Abstract: There are over three million people living with epilepsy in the U.S. People with epilepsy experience multiple daily challenges such as seizures, social isolation, social stigma, experience of physical and emotional symptoms, medication side effects, cognitive and memory deficits, care coordination difficulties, and risks of sudden unexpected death. In this work, we report findings collected from 3 focus groups of 11 people with epilepsy and caregivers and 10 follow-up questionnaires. We found that these participants feel that most people do not know how to deal with seizures. To improve others’ abilities to respond safely and appropriately to someone having seizures, people with epilepsy and caregivers would like to share and educate the public about their epilepsy conditions, reduce common misconceptions about seizures and prevent associated stigma, and get first aid help from the public when needed. Considering social stigma, we propose design implications of future technologies for effective delivery of appropriate first aid care information to bystanders around individuals with epilepsy when they experience a seizure.
Understanding the Technological Practices and Needs of Music Therapists
Presentation time: 11:30 – 13:00 (ET)
Abstract: Music therapists provide critical, evidence-based care to a diverse range of clients. However, despite their active role in empowering individuals affected by disability, stigma, grief, and trauma, music therapists remain understudied by the HCI community. We present the results of a mixed methods study of 10 interviewees and 20 survey respondents in the U.S., all of whom are practicing music therapists. Our results show that music therapists engage in technology-aided practices such as making personalized connections with clients, assisting in identity formation, encouraging musicking (music-making), and preserving legacies. Results also show that music therapists face key challenges such as environmental, societal, and financial constraints, including high workload, lack of awareness of the value of music therapy among the general community, and limited access to secure technologies for remote client care. In light of these challenges, we present a set of design implications for creating future technologies for music therapists. This work diverges from previous studies on music therapy technologies, which focus largely on interventions with music therapy clients, by highlighting the often-neglected perspectives from music therapists.